HELP US CLOSE THE GAP IN EDUCATION SURROUNDING RARE DISORDERS

The National Organization for Rare Disorders Student Chapter at Purdue University helps students in Bioimaging, Chemistry, and Biomedical Sciences connect through networking, volunteering, and research focused on rare diseases. Our mission is to raise awareness, educate, and advocate for rare disease research. We aim to build a supportive community and collaborate with local nonprofits, pharmaceutical companies, and research labs. We bring in speakers, promote research and educational opportunities, and support diversity within the rare disorders community. 

Today, we are asking for your help to achieve these goals!

WHY DO WE NEED YOUR SUPPORT?

Supporting this project is crucial because it addresses the lack of education and awareness about rare disorders. These conditions often suffer from limited visibility, leading to delays in diagnosis, inadequate treatments, and insufficient support for patients and their families. 

By contributing, donors can help close this gap, promoting a more informed and compassionate healthcare community. The project also empowers future medical professionals with the knowledge and tools needed to better understand and treat rare disorders. Donors will play a vital role in reaching the main goals of this project, which include:

1. Hosting Seminars and Workshops: Donations will help us invite leading scientists and Rare Disease Congressional Caucus members to share their insights, raising awareness and educating our community.
2. Supporting Research Studies: Funding will support cutting-edge research on rare disorders, advancing diagnosis, treatment, and patient care.
3. Educational Programs: Contributions will fund educational programs for students, enhancing their knowledge and preparing them to address rare disorders in their careers.
4. Developing Online Courses: Your support will help create online courses about rare disorders, broadening access to education for patients, families, and the general public.

Image from Fall 2023 presentation.

WHY MAKE MY GIFT NOW?

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Without adequate funding, we won't be able to invite expert speakers, which will limit educational opportunities for our students and the community. This lack of expert interaction will hinder the spread of important knowledge about rare disorders. Additionally, our research and development of educational resources will be restricted, slowing progress in understanding and treating these conditions.

Rare disorders often go unnoticed, and there is a critical need to raise awareness and educate both the medical community and the public. Immediate funding will allow us to host seminars and bring in experts, speeding up the spread of essential information about rare disorders.

Your support will make a lasting impact and help advance the field of rare disorders. Please consider donating today to help us achieve these important goals!